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PNRC MissionTo improve and promote high quality care of pediatric nephrology patients | PNRC Aims
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MEMBERSHIPThe Pediatric Nephrology Research Consortium (PNRC) is comprised of four (4) categories of membership and each has distinct benefits and requirements. Categories, their benefits, and requirements are subject to change at the discretion of and with approval by the board of directors of the PNRC. Read more | Woman With Rare Kidney Disease Shares Her Story“When I see Grace, the first word that comes to mind is “sparkly”. She always radiates positive energy. Her diagnosis of focal segmental glomerulosclerosis (FSGS) at age thirteen changed her life. There were good days, but there were many bad days too. Gradually the treatment options in our arsenal emptied and her FSGS advanced to end stage renal disease. It was sad when this happened. I cannot even imagine what she must have felt going through this, or the pain her parents experienced seeing her struggles. But every cloud has a silver lining. Grace is one of the many children and adults who have selflessly volunteered to be a part of CureGN in order to advance science. Just like all participants, she dedicates her time, effort and commitment knowing breakthroughs may not occur for years to come. She participates recognizing that slowly but surely, the outcomes for glomerular disease will change. I am thankful to all of our patients for the shared vision that the only way to change things is to be part of a collective working towards a common goal, over years to come.” Myda Khalid, MD, |
Congratulations!The PNRC would like to Congratulate members of the Coordinator Committee who were accepted to present at two conferences in 2022. They are working hard on a national level to represent and teach other coordinators. Every presentation needs a catchy title, right? You’ll notice a theme across their presentations titles. Both conferences were originally planned to occur at Disney World, and remains the location for SoCRA. However, ACRP has moved to another facility in Orlando, ACRP 2022 (Association of Clinical Research Professionals) To Infinity and Beyond Coordinator Duties: Steps to Advancing Your Career (Margret (Margo) Kamel, PhD, CHES, CCRC; Teri Crumb, MSN, RN, CCRC; Theresa Kump, BA, CCRP; Corinna Bowers, BSBA, CCRC) SoCRA 2022 (Society of Clinical Research Associates) Snow White the Coordinator and Seven Tiny Tips to Succeed with Managing Research Trials (Margret (Margo) Kamel, PhD, CCRC; Teri Crumb, MSN, RN, CCRC) |
